World Down’s Syndrome Day

Today is World Down’s Syndrome Day, a day to raise awareness about Down’s Syndrome and to help dispel some of the myths around it. Myths that in many places lead to children being abandoned and sometimes institutionalised.

Until recently even in so-called Western countries, and today still in many places do people have the impression that every child with Down’s syndrome is a worst-case scenario, with even doctors advising parents not to keep the child, because it is no use. This is a major misconception.

Continue reading “World Down’s Syndrome Day”

DI: Preparing the Children

A child who is moved from an institution into a family situation without any preparation, is likely to be traumatised and this may cause a lot of very challenging behaviour. It has been shown that if children with severe intellectual disabilities, who have lived in an institution for a long time, are moved to a family without preparation, the shock can actually kill them.

So, it is essential to provide proper preparation for the children, when you are planning to move them out of an institution. This blog will look at what that entails.

Continue reading “DI: Preparing the Children”

DI: The Institution’s Job

An institution deciding to move their children to family-based care – or being ordered to by their government – has a big job ahead of it. Just showing the children the door is not going to be enough and would lead to a lot of suffering and trauma among the children. It would be likely to lead to children ending up living on the street and/or being targeted for trafficking and sexual exploitation.

Making the move to family-based care needs to be responsibly handled and carefully planned. So, in this blog I will put forward some of the things that are very important to make sure of.

Continue reading “DI: The Institution’s Job”

International Women’s Day

Today is International Women’s Day, something that is celebrated more exuberantly in some countries than in others. Whether or not Women’s Day is celebrated where you are, it is important to give some thought to the position of women and to their achievements.

This is not only useful and important in general, it is also relevant with regards to the efforts to move towards family-based solutions in alternative care.

Continue reading “International Women’s Day”

DI: The Government’s Role

It is possible for individual institutions to decide to start deinstitutionalisation by themselves, at the grassroots level. They can look for ways to support the families of the children in their care, so that the children can go home. They can provide training to the staff working at the institution to give them the skills to become foster parents or small group home caregivers instead, for the children who do not have a home they can go back to.

I am currently involved with an organisation in India that is working not just towards making sure all the children in their care can be moved to family situations, but to create a replicable model that can be followed by others in the country. However, to be able to put together a sustainable system of family-based alternative care, some government involvement is always necessary.

Continue reading “DI: The Government’s Role”

What Does Deinstitutionalisation Mean?

A very long word, often shortened to DI to save ourselves the trouble, that is thrown around more and more, in various different places. A word of some importance, and therefore important to understand. What exactly do people mean when they talk about deinstitutionalisation and what is involved in the process.

In this blog I will give a brief overview and in the following blogs I will pick out some elements that are mentioned today and look at them more closely, to allow a more thorough understanding to develop.

Continue reading “What Does Deinstitutionalisation Mean?”

If Not Extended Family, Then Foster Family

Despite the impression created by the huge numbers of children in institutions and other types of formal alternative care around the world, by far the majority of children not cared for by their parents, are not in formal alternative care. Most of them are already taken in by their extended families, right at this moment, without any additional awareness raising or support. This is something worth building on.

However, just like there are some children who will not be able to be cared for by their parents, no matter how much support they receive and how great the community services available are, there will also be children who do not have extended family members able to take them in and care for them. For them other family-based solutions need to be found.

Continue reading “If Not Extended Family, Then Foster Family”