In last year’s blog to mark the International Day of Persons with Disabilities (which you can find HERE), I explained how children with disabilities are more likely to end up in institutions and less likely to get out of them, even when a transformation of care process has been set in motion. This year, I would like to shine a light on how children with disabilities are more often than not excluded from any decisions made about them, even more so than children in institutions are in general.
Continue reading “International Day of Persons with Disabilities”Tag: #childrenwithdisabilities
Rethinking Group Homes
For a long time, it was thought that if it was difficult to place a child with a foster family, placing him in a small group home was a suitable alternative. Group homes were seen as imitating families and where therefore expected to have a similar beneficial effect.
Over the past couple of years, experts have come back from this position, because there is too much evidence pointing in the opposite direction.
Continue reading “Rethinking Group Homes”International Albinism Awareness Day
Albinism – being ‘an albino’ – is a condition where a person’s body does not produce any pigmentation. This leads to white hair, a very pale (or pink, because you can see the blood vessels through it) skin and eyes that are blue, but in such a pale way that the redness of the back of the eye shines through it.
Pigmentation is important to protect the skin and the eyes from UV radiation. Without this protection a person is far more likely to develop skin cancer. The eyes have very low tolerance for bright light and may have other problems with vision. This in itself deserves awareness raising. However, unfortunately there are greater problems attached to Albinism in certain parts of the world.
Continue reading “International Albinism Awareness Day”India Trip
As I am about to get on an airplane again, to go home tomorrow, it seems like a good moment to look back on the weeks I have spent in India and the work I have done here.
As many of you know, before I founded Why Family-Based Solutions, I ran Orphanage Projects. This trip has been an interesting juxtaposition of the work of those two. Having spent half of it on strategising for deinstitutionalisation and the other half on still improving conditions in several institutions.
Continue reading “India Trip”World Down’s Syndrome Day
Today is World Down’s Syndrome Day, a day to raise awareness about Down’s Syndrome and to help dispel some of the myths around it. Myths that in many places lead to children being abandoned and sometimes institutionalised.
Until recently even in so-called Western countries, and today still in many places do people have the impression that every child with Down’s syndrome is a worst-case scenario, with even doctors advising parents not to keep the child, because it is no use. This is a major misconception.
Continue reading “World Down’s Syndrome Day”DI: Preparing the Children
A child who is moved from an institution into a family situation without any preparation, is likely to be traumatised and this may cause a lot of very challenging behaviour. It has been shown that if children with severe intellectual disabilities, who have lived in an institution for a long time, are moved to a family without preparation, the shock can actually kill them.
So, it is essential to provide proper preparation for the children, when you are planning to move them out of an institution. This blog will look at what that entails.
Continue reading “DI: Preparing the Children”World Day of Social Justice
“Together we must set out to correct the defects of the past.” Nelson Mandela
Today, 20 February, is World Day of Social Justice. Something worth pausing to reflect on. The fight for social justice, for equal rights and respect, is one that has been fought for a long time now and that will continue for what looks like some time to come. The fight for social justice is fought on many different fronts, because there is still social injustice in many, many guises. As usual, in this blog, I will highlight the way this particularly relates to vulnerable children around the world.
Continue reading “World Day of Social Justice”So How DOES One Help?
As the trauma of the expensive December-month is starting to fade, this might be a good time to have a look at what causes you would like to donate to this year. People who really want to help vulnerable children, may feel thrown off kilter after hearing that donating to so-called orphanages actually does a lot of harm, despite the best intentions. This is very understandable. I really hope that this will not shake their determination to make a difference and donate to causes that would be of great help.
So in this blog I want to give an overview of the kind of things that ARE beneficial to vulnerable children and that can use backing and financial support.
Continue reading “So How DOES One Help?”What About Children with Disabilities?
A five-year-old girl, weighing 6kg, who has lived in an institution since she was a few months old, because she has spastic cerebral palsy. At five years old she is the size of a very skinny 18-month-old and she has reached the milestones of a four-month-old baby. On first meeting her, it is easy to presume that she is very severely impaired, both physically and intellectually. However, appearances are deceiving.
Continue reading “What About Children with Disabilities?”Disability as Reason for Institutionalisation
As the momentum of the global movement towards deinstitutionalisation is growing, the proportion of children with disabilities in institutions is growing. In many countries, children are being moved from institutions to family-based alternatives, but in this process the children with disabilities are left behind. Often for many of the same reasons that had them end up in the institutions in the first place.
Continue reading “Disability as Reason for Institutionalisation”