World Autism Day

Today is World Autism Awareness Day. I consider it very important that awareness is raised about autism, both as an advocate for children with autism who are often more likely to end up in an institution, and as someone who is on the spectrum herself.

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DI: Resources

When the idea of deinstitutionalisation is first mentioned at an institution, there is usually a lot of push-back. Among the first arguments to be brought up are usually: ‘but we have all these buildings here’, and ‘what about our staff, they will all be out of work’. These are understandable concerns, but – as we shall see in this blog – not things that need to be obstacles.

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So How DOES One Help?

As the trauma of the expensive December-month is starting to fade, this might be a good time to have a look at what causes you would like to donate to this year. People who really want to help vulnerable children, may feel thrown off kilter after hearing that donating to so-called orphanages actually does a lot of harm, despite the best intentions. This is very understandable. I really hope that this will not shake their determination to make a difference and donate to causes that would be of great help.

So in this blog I want to give an overview of the kind of things that ARE beneficial to vulnerable children and that can use backing and financial support.

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What About Children with Disabilities?

A five-year-old girl, weighing 6kg, who has lived in an institution since she was a few months old, because she has spastic cerebral palsy. At five years old she is the size of a very skinny 18-month-old and she has reached the milestones of a four-month-old baby. On first meeting her, it is easy to presume that she is very severely impaired, both physically and intellectually. However, appearances are deceiving.

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Disability as Reason for Institutionalisation

As the momentum of the global movement towards deinstitutionalisation is growing, the proportion of children with disabilities in institutions is growing. In many countries, children are being moved from institutions to family-based alternatives, but in this process the children with disabilities are left behind. Often for many of the same reasons that had them end up in the institutions in the first place.

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Children with Disabilities

A five-year-old girl, who weighs 6kg and spend 20-22 hours a day in a baby crib that is a bit too small for her, at an adoption centre where she has lived for over 4 years now. All because she has cerebral palsy.

Today is the International Day of Persons with Disabilities. A good time to take a moment to look at the situation of children with disabilities in institutions. Unfortunately, it is not a pretty one.

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“Intellectual Disability Among Children Everywhere”

This week the latest manual, the fourth in the series ‘Children Everywhere’, has come out. Originally, it was written for the NGO Orphanage Projects, giving advice to people running institutions on how to provide  better care to children with intellectual disabilities. The writing and publishing of a manual do not happen in the space of a day or a week, so it was written well before any plans of folding Orphanage Projects and starting Why Family-Based Solutions occurred to me.

This does not mean that the book is no longer relevant, however.  First of all, there are still many, many institutions caring for children with intellectual disabilities, without necessarily being quite aware of the needs of these children. But secondly, although written for institutional situations, the manual can play an important role in family-based care too.

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What Could Possibly Be Wrong with Helping an Orphanage?

Some excerpts from the first chapter of ‘How to Help, not Harm: What Living in Orphanages Does to Children and How You Can Help’, written by me:

“Most of us very much want to do something to help the weakest among us, those who are most vulnerable. We feel a moral obligation to help improve the lives of those who are unable to help themselves. And we feel a sense of satisfaction and contentment when we think that a small sacrifice on our part will improve the quality of life of those less fortunate. From ancient times, the moral obligation and the command  to take care of widows and orphans has been heard across different cultures and different religions.

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